By Sarah D. Phillips
Sarah D. Phillips examines the struggles of disabled individuals in Ukraine and the opposite former Soviet states to safe their rights throughout the tumultuous political, monetary, and social reforms of the final 20 years. via player commentary and interviews with disabled Ukrainians around the social spectrum—rights activists, politicians, scholars, staff, marketers, athletes, and others—Phillips records the artistic thoughts utilized by humans at the margins of postsocialist societies to claim claims to "mobile citizenship." She attracts in this wealthy ethnographic fabric to argue that public storytelling is a strong capability to extend notions of relatedness, kinship, and social accountability, and which support form a extra tolerant and inclusive society.
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Extra info for Disability and Mobile Citizenship in Postsocialist Ukraine
In addition to the copious offers of assis27 tance they had received thanks to the radio interview, Zoia and Sasha 28 also got many inquiries about active wheelchairs. Many callers wanted 29 to know where they, too, could get one. Zoia said, “I began to feel really 30 guilty about how we’d gone on and on about the active wheelchair over 31 the radio. I realized it wasn’t fair to talk about all the merits of the chair, 32 to talk about having one, if we couldn’t help other people get one, too. ” In founding Lotus, Zoia and Sasha decided to make the 35 production and distribution of active wheelchairs in the country one of 36 their main priorities.
Mobility disabled persons in particular face many difficulties due to the lack of accessible housing, public spaces and buildings, and limited accessible public transport. Many live in so-called khrushchovki, five-story apartment buildings without elevators built as temporary housing after World War II that were never replaced or improved. Some wheelchair users and others who have trouble getting around have managed to install makeshift ramps; others, men especially, have grown accustomed to going up and down stairs in their wheelchairs.
Still, Oleg completed most of his coursework from home through 4 correspondence courses and visited the university only for exams and spe5 cial lectures. 6 About a year and a half after Sasha’s accident the Pavlovs began to find 7 themselves in financial trouble. Ivan’s job as a low-level engineer did not 8 pay enough to support the entire family, and Zoia started to regret her 9 decision to quit her job. By 1992–1993 she only received a nominal caregiv10 er’s pension from the state—less than $2 a month, a sum she did not even 11 bother to go collect.